Parkinson's care at home
At The Good Care Group, we have been supporting people to live a purposeful and meaningful life with Parkinson’s disease for over 10 years. We know how worrying it can be for families when faced with the reality that a loved one is living with the condition. However, a Parkinson’s diagnosis does not mean you cannot live well with the disease, maintaining as much independence as possible with the right level of care and support.
Stay at home with high quality
Receiving compassionate care in the comfort, safety and familiarity of your own home has far reaching benefits in improving overall health and wellbeing for a person living with Parkinson’s, as opposed to moving into a care home.
Moving at any stage in life can be disruptive and stressful, and so much more so when faced with a diagnosis of a condition like Parkinson’s. We know that staying at home and receiving compassionate, one-to-one care from a highly trained and well-matched professional carer improves quality of life for an individual living with Parkinson’s disease. Our personalised approach to providing high quality Parkinson’s disease home care, with a fully managed and flexible service that families can rely on is setting the standards in live in care for those
What is Parkinson’s?
Parkinson’s is a progressive neurological condition that causes problems in the brain that gets worse over time. Over 145,000 people are living in the UK with a diagnosis of Parkinson’s, so there are many families across the country affected by the condition and the symptoms it presents to everyday life.
Parkinson's develops when cells in the brain stop working properly and are lost over time. These brain cells produce a chemical called dopamine. Symptoms start to appear when the brain cannot make enough dopamine to control movement properly.
There are three main symptoms of Parkinson’s that impact a person’s life – a tremor or shaking that can be uncontrollable as the condition worsens, slowness of movement and a rigidity or muscle stiffness, all of which present problems for daily living if not supported in the right way. Whilst these are the main symptoms of the disease, other symptoms include issues with sleep, memory and problems with mental health given the nature of the disease.
Parkinson’s live-in care
At The Good Care Group, we believe that people living with Parkinson’s disease have the right to enjoy a high quality of life, with dignity and independence in their own home. We know how important it is for people to retain choice and control in life, and for many the desire to remain in their own home and community is essential to their overall health and wellbeing.
Our live-in care service for those living with Parkinson’s is highly personalised focusing on a true understanding of the fluctuating and individual nature of the condition. Our professional care team, who are all trained by Parkinson’s UK, the leading Parkinson’s charity supporting those affected by the disease, truly understand the need for proactive and effective medication regimes to be responsive to the changing nature of the condition. We adopt a compassionate, flexible and holistic approach to care at home recognising that Parkinson’s can mean a person is not only living with mobility issues, but will often have emotional, social and psychological needs too.
What does our Parkinson’s care include?
Specialist nurse-led care
Importantly for those living with Parkinson’s, we provide nurse-led care which means our professional carers are trained to monitor and identify any changes in your health, responding appropriately and avoiding any unnecessary hospital admissions. As part of our commitment to delivering a high-quality home care service, we monitor and measure health outcomes to ensure we continually improve the care we provide.
Managing and administering medications
Our professional carers are trained in medications management and use an electronic medications system to ensure all medications are managed proactively and effectively. They will also collect prescriptions from the pharmacy.
Ensuring safe mobility in and around the home
We have an in-house Occupational Therapist, Jackie Cooper who will provide expert guidance and advice as to what equipment can improve safe movement and mobility around your home, whilst minimising falls. Jackie is well placed to provide advice and recommendations as to any home adaptations that may make life easier.
Companionship as and when you need it
Our carers will provide companionship whilst ensuring your privacy is respected. We ensure that a perfectly matched carer shares similar values and interests as you to make life interesting, stimulating and enjoyable, whilst being there for you to support your emotional and psychological needs.
Providing discreet and sensitive personal care
This can include the task-orientated aspects of caring for someone, like bathing and getting dressed, but also those that promote self-esteem, like having your nails maintained, or your hair styled.
Planning and cooking meals
Meals will be planned and cooked according to your choice, preferences and nutritional needs, all served at a time that suits you.
Facilitating social arrangements in the home
Your carer will ensure you can invite friends over for socialisation and celebrations, providing the support you need to enjoy yourself and not worry about organising anything.
Trips and visits out of the home in your local community
Our carers know how important it is to ensure you can continue to do as much you wish and that you remain connected to your local community – whether that is a stroll round the local park or attending clubs or groups in the local area or visiting friends, or those shops you always have.
This includes cleaning of all rooms and vacuuming throughout to keep your house to the standards of cleanliness and tidiness you
Caring for your much-loved pet
Carers will happily support looking after your pet, including taking dogs for regular walks.
Parkinson’s live-in care, short term care or respite care
With a full time, live-in care arrangement a professional carer will live with you in your home providing around the clock care and support, focused on improving your health and wellbeing, whilst enhancing the quality of your life. There are many benefits of 24 hour care, not least that the carer will truly get to know you as a person, not just your care needs but they will be on hand to support you to live life the way you wish, with as much independence as possible.
Respite care or a short term arrangement provide an opportunity for a family carer to take a much needed break from caring for someone living with Parkinson’s, or for you to try live-in care for the first time to see how live-in care works and whether it is the right choice for
you in the future.
Case study: How live-in care enabled Arthur to live well
My father Arthur is 76 and lives in North London with my mother, Maisie. He has Parkinson’s and needs quite a bit of help every day to get up and dressed, eat good meals, take his pills
and get out and about.
His speech is not very good and if you don’t know him well, it is hard to understand what he has to say. He now uses a wheelchair, which he needs someone to push. He also has difficulty in swallowing which makes eating and taking medication a big worry – especially because he is on such a strict regime with his medication.
We had been using an hourly care agency to take the pressure off my mother, but his needs were increasing, and she was struggling to cope. Most worrying for me was that the carers were coming at unpredictable times, which made it harder to know if he was taking the right medication at the right time. There always seemed to be new faces coming to the door. They did not understand my father and I think he found all the changes very tiring. I wanted to find out more about live-in care and talked to The Good Care Group to see what their Parkinson’s home care service could offer.
We spoke about his increasing needs and how he would feel more comfortable with male carers. They introduced us to Henry and Bob, two carers fully trained by The Good Care Group using Parkinson’s UK materials. They were able to provide specialist round-the-clock support for his condition.
Best of all they were matched to my father perfectly. They both loved their motorsport – my father spent most of his working life in that industry – so there was plenty of common ground between them.
Live-in care gives us the flexibility and continuity we wanted for him. Flexible because Parkinson’s can be unpredictable – some days the symptoms are worse than others. Now we have the continuity with the same two carers, he has a settled routine that is built around him and when he needs to take his medication.
The carers have supported his physio regime by providing some gentle exercises that improve his mobility and make him more independent. They have also sorted out day trips for him and my mother – they had a picnic recently in Regent’s Park, where Henry took care of the practical things, so they could just enjoy themselves.
Both Henry and Bob have done wonders for my father this last year. They can interpret his needs because they have got to know him so well. They slow things down, so they can continually check that dad is content with what is happening and have on-going discussions about his likes and dislikes and build this into his everyday life.
They have taken the burden off my mother and allowed her to be his wife, not his carer. It has had such a big impact on him because he is now enjoying life a lot more – and that has also given me tremendous peace of mind. Thank you for all you have done.
Why choose The Good Care Group?
We work closely with several specialist Parkinson’s nurses around the country who offer care and support to our clients who are living with Parkinson’s and their families. All our professional carers receive Parkinson’s training as part of their induction programme in collaboration with Parkinson’s UK, the leading charity in the field of Parkinson’s so you can be assured that the care provided is market leading based on best practice. They are trained to understand the impact on daily life caused by the symptoms of Parkinson’s and how they can work positively with the condition to improve quality of life. Carers all receive training in medications management to ensure they are competent to manage complex and personalised medications regimes required for someone living with Parkinson’s.
Access to our experts
Our expert Occupational Therapist, Jackie Cooper provides our clients with the support they need to live safely and well at home, with all the equipment and any home adaptations they need to help them to live a fulling life, as independently as possible.
We work closely with and liaise with all other healthcare professionals involved in delivering care to someone living with Parkinson's, including GP’s, district nurses and physiotherapists to ensure all health needs through a holistic and multi-disciplinary approach to
We have a dedicated in-house Specialist Consultant Nurse, Dr Jane Pritchard who develops, leads and supports our approach to delivering high quality care at home for those living with Parkinson's. Dr Pritchard will ensure our care teams are supported to not only effectively manage medications but are able to provide support with several complex medical inventions.
A perfectly matched care team
Our professional care teams are chosen carefully to meet both an individual’s medical and holistic needs. Similar personalities and interests help the carer and the client form closer relationships, provide more enjoyment and significantly contribute to a better way of life. We also ensure the chosen live-in care team is introduced to you and your loved one before the care service starts. In the rare situation, the match does not work out, we will happily work with you to find a care team that does.
Expertly trained care teams
Our industry leading training programme completed by our care teams has been created with leading charities and clinical experts and goes well beyond industry standards. This enables our professional carers to support a range of conditions affecting older people, including complex conditions that require more monitoring, care and support. From training, through probation, into placement and beyond our carers never stop learning new skills that ensure they can deliver the quality care our clients should expect, whilst finding new ways to further enhance the level of care they provide.
Innovating care delivery through technology
Unlike any other live-in home care provider in the UK, we have invested in creating our own market-leading technology to further enhance our service. Through the development of an online community for our clients, their families and our professional carers, we are proactive and responsive to emerging issues, whilst enabling the softer social benefits that technology brings. The secure platform is focused on ensuring our carers are equipped to effectively deliver the high-quality care our clients should expect, whilst delivering improvements in health outcomes. Our families can access important information about the care of their loved one, providing a reassuring window into the care they are receiving.
Our professional carers use a dedicated community through a Chromebook to complete daily care records, update care plans, monitor nutrition and hydration and manage medications proactively with safety features ensuring accurate administration. This allows us to effectively monitor the health outcomes of our client’s care, so we can prevent and respond to incidents and ensure the very highest quality of care is always provided. The online community also allows our professional carers to network, support each other and share best practice, whilst facilitating a connection which is so important for a remote workforce.
For families who may live some distance away from their loved one, they can access care plans, care records and a calendar of events as and when they wish, offering much-needed peace of mind. We are proud that this community offers families a transparent and immediate insight into our service. The technology also provides families with reassurance that any cash handled by our carers is being managed safely and accurately, whilst enabling them to manage practical arrangements, such as food shopping remotely. They can also connect with our other clients’ families who may well be in a similar situation as themselves, so they can share their care experiences and support
Our professional carers will utilise the technology for their clients’ socialisation and enjoyment – everything from video calls with family members so they feel connected, online shopping to general
Improving health outcomes
At The Good Care Group every decision is driven by delivering improved health outcomes for our clients. Through our dedicated and committed approach to providing high quality care to our clients and the use of our market-leading digital technology, we see significant improvements in our clients’ overall health and wellbeing
Unique to the live-in home care market, the technology enables us to digitally monitor health outcomes allowing us to effectively predict risk and shape the care we provide. We know, for example that urinary tract infections (UTI’s) are one of the leading causes of hospital admissions for our clients, so we equip our carers with handheld testing kits to proactively monitor our clients for infections. We then benchmark our data to demonstrate how effective our care is in improving the quality of our client’s lives in the context of other types of care provision, for example care homes.
Our health measures are focused on achieving the following:
- Promoting wellbeing, independence and enjoyment
- Reducing behaviours that challenge through implementation of psychosocial techniques
- Reducing and eliminating antipsychotic drug use
- Promoting excellence in nutrition and hydration
- Reducing and preventing falls in the home
- Reducing hospital admissions and re-admission
- Reducing UTI’s and chest infections
- Reducing carer stress
We are proud to be transforming health outcomes for those who require care at home. In 2020 our care teams achieved the following outcomes for those they cared for:
Proactive Monitoring of Chest Infections
Our vigilant carers manage early signs of illness, such as chest infections enabling timely intervention to avoid unnecessary hospital admissions. This has resulted in a 28% reduction in chest infection hospital admissions.
Reducing urinary tract infections (UTI’s)
Through enhanced training our professional carers can perform urinalysis tests. This means they can provide timely information to GP’s, enabling a quick diagnosis and treatment. 80% of our clients were diagnosed in 2020 using urinalysis kits. Through the introduction of testing, our clients are three times less likely to require emergency interventions involving a 999 call or ambulance call out when a urine test is completed.
Unrivalled falls prevention programmes
In England alone, 30% of people over the age of 65 fall at least once a year and for those 80 and over it is 50%. By comparison, only 7% of our clients aged 65 and over fell at least once, and that was only 6% for those aged 80 or over.
Our clients are six times less likely to suffer a serious injury as a result of a fall than residents living in a residential care home. This is a result of our quality one-to-one care, which just cannot be achieved in even the very best care home, and our effective personalised falls management programmes.
Working with our in-house Occupational Therapist, we identify clients who are ‘frequent fallers’ and through an intensive and personalised approach to falls management resulted in 50% of our clients never falling again.
A specialist pathway for palliative care at home
For those with a life-limiting illness or a terminal condition, most of us given the choice would wish to end our days in the comfort of our own home. However, the percentage of people in the general population who can do that is as low as 19%. By comparison, our approach to one-to-one palliative care at home has enabled 81% of our clients to pass away in the place they love most – their own home.
Effective pressure sore management
Our high-quality home care provided by dedicated and professional carers has seen a staggering reduction in pressure sores in those we care for when compared to both hospital and care home settings. Comparative data shows that you are 13 times less likely to acquire a pressure sore in The Good Care Group's care when compared to a hospital and 26 times less likely when compared to care home rates.
Efficient management of medications
Our digital technology is used proactively to effectively support safe administration of medications, which has seen error rates of 2.4% compared to a 22% error rate in care home settings.
Reducing the use of antipsychotic medication for those living with dementia
The use of antipsychotic medication to treat dementia symptoms has been increasingly challenged over the last ten years, as they have been shown to be harmful for people living with dementia and are at times prescribed unnecessarily. Through our approach to professional and specialist one-to-one care for those living with dementia, and the use of our market leading digital technology (eMAR) our clients are four times less likely to be prescribed antipsychotic medication than residents of care homes.
Peace of mind and reassurance
Rated ‘Outstanding’ by the Care Quality Commission (CQC)
The Good Care Group is the only live-in care provider in the UK to achieve an ‘Outstanding’ rating by CQC across all five categories – safe, effective, caring, responsive and well-led. We know this provides families with peace of mind that their loved one is receiving the best possible care.
A fully managed and regulated Parkinson’s care service
We provide a fully managed and regulated Parkinson’s care service which offers families reassurance at a time they need it most. Unlike introduction agencies who are not regulated by CQC, all our professional carers are directly employed and managed by us. We ensure they are supervised by an experienced manager and supported by clinical experts – 24 hour a day, 7 days a week.
Local teams with national coverage
We operate nationwide with a local approach to management of our teams near you. Each dedicated care manager has as small portfolio of clients to support, enabling the care team to provide a tailored one-to-one approach with unrivalled levels of monitoring
What is included in our service?
Our highly personalised Parkinson’s disease home care includes:
- Full assessment before care starts
- Bespoke and flexible care plan developed with input from the family and other healthcare professionals
- Matching of the most suitable care team to meet the holistic needs of our clients
- Dedicated care team led by an expert regional care manager
- Meal planning and household tasks
- Social activities and lifestyle enhancement
- Specialist support and expertise - 24 hours a day, 7 days a week
- Access to clinical expertise and medical support
Costs of our Parkinson’s care
The cost of care for people living with Parkinson’s and advanced neurological conditions will be typically higher, as it is a specialist care at home service.
It is worth considering however that live-in care is often cheaper than the total cost of domiciliary care for people living with Parkinson’s. When a person is receiving hourly care, provided by a domiciliary care provider it is likely that you will be charged extras for additional services to support the person’s Parkinson’s needs on top of the cost of a carer visiting. These extras add up and can become costly over time. The total cost to provide hourly care to someone living with high or complex needs can sometimes exceed the price of an inclusive live-in care service.
Parkinson’s care at home is typically in line with – and sometimes less than – what you would pay for residential care, with the added benefit of receiving one-to-one tailored care for the person living with Parkinson’s, which simply cannot be achieved in a care home.
We are committed to supporting families through their Parkinson’s journey with information that helps inform their decisions
when planning long term care.
Parkinson’s UK provide a wealth of information on their website including an online magazine ‘Your Magazine’ offering useful stories, expert advice and tips on how to improve your life and live with the disease.
The Cure Parkinson’s Trust (CPT) is another Parkinson’s charity focused on finding disease modifying treatments that change the way the disease progresses and transform the lives of those living with Parkinson’s. Their website has useful information and research, including progress of treatments like stem cell replacement therapies which some families may find useful.