Care advice hub

National Carers Week takes place in June every year. The event is designed to support the six million people in the UK who provide care at home for elderly and disabled people.

Providing care at home is a hugely demanding job that brings great responsibility, often without great financial reward. The reality is that carers make a huge impact: not just on the lives of those individuals who they are caring for, but to their families, doctors and other medical professionals and even to the wider community.

Christine, live-in carer, shares this with us:

“As a live-in carer, I do not have the luxury of structured office hours or set routines. I must think on my feet, assessing risks as I go, making decisions that affect my client’s well-being in real time. Every movement, every action is done with purpose – whether it is adjusting a chair for better posture, checking for signs of discomfort, or recognising the early signs of an emergency. My instincts have been honed by experience, my training constantly put to the test.

Risk assessments are not just theoretical; they are an everyday practice. I evaluate surroundings, anticipate potential hazards, and adapt quickly. Whether it is ensuring that a room is free of trip hazards, recognising when a client’s condition is deteriorating, or adjusting care plans as needed, I am always alert. The safety and comfort of my client are my top priorities, and I take that responsibility seriously.

Self-reflection is my silent companion. At the end of each day, I replay moments in my mind – what went well, what could have been better, and how I can improve. Quality assurance in caregiving is not just about ticking boxes; it is about continuously learning, growing, and refining my approach. I remind myself that I am human, that I too need care, and that taking time to reflect is essential for my own well-being.”

Christine’s insight reminds us that caregiving is as much about empathy and vigilance as it is about skill and dedication. During National Carers Week, it is important not only to recognise the tireless efforts of carers like Christine but also to take meaningful steps in offering them the support, recognition, and resources they deserve.

Whether you are a carer, know someone who is, or are simply part of a community that benefits from their efforts, this week is a powerful reminder: carers matter, and their well-being is vital too. Let’s take this opportunity to thank them, support them, and ensure they never feel alone in the work they do.

Caring for someone living with dementia can bring about a whirlwind of questions and you are not alone in seeking clarity and guidance. This FAQ aims to address some of the most common concerns and provide helpful insights as you navigate this journey.

1. What exactly is dementia? Is it the same as Alzheimer’s?

Dementia is an umbrella term for a group of symptoms that affect cognitive functions like memory, thinking, language, and problem-solving. It’s not a specific disease itself. Alzheimer’s disease is the most common cause of dementia, accounting for a significant majority of cases. Other types of dementia include vascular dementia, Lewy body dementia, and frontotemporal dementia.

Read more about the causes, risk factors and diagnosis of dementia here.

2. What are the early signs of dementia?

Recognising the early signs can be crucial for timely diagnosis and support. These signs can vary from person to person, but some common ones include:

• Memory loss that disrupts daily life (e.g. forgetting recently learned information, asking the same questions repeatedly).
• Challenges in planning or problem-solving (e.g. difficulty following a recipe or managing finances).
• Difficulty with familiar tasks (e.g. trouble driving to a familiar location or remembering the rules of a game).
• Confusion with time or place (e.g. getting lost in familiar surroundings or not knowing the date).
• Trouble understanding visual images and spatial relationships.
• New problems with words in speaking or writing.
• Misplacing things and losing the ability to retrace steps.
• Decreased or poor judgment.
• Withdrawal from work or social activities.
• Changes in mood and personality (e.g. becoming easily agitated, suspicious, or depressed).
• It’s important to remember that these can also be signs of other conditions, so consulting a GP for a proper diagnosis is essential.

For more information on the signs of dementia, please click here.

3. How is dementia diagnosed?

Diagnosing dementia involves a comprehensive assessment, which may include:

Medical history review: A healthcare professional will ask about the person’s symptoms, past health conditions, and family history.
Physical examination: To rule out other medical conditions that could be causing the symptoms.

Cognitive and neurological tests: These tests evaluate memory, thinking, language, and other cognitive functions.

The diagnostic process can take time, but it’s crucial for understanding the specific type of dementia and developing an appropriate care plan.

To read more about the process of dementia diagnosis, please click here.

4. What kind of care is needed for someone with dementia?

The care needs of someone with dementia evolve as the condition progresses. Initially, they may only require some support with complex tasks or reminders. However, as dementia advances, they may need more assistance with daily activities such as:

• Personal care such as bathing, dressing, grooming.
• Mobility, including walking and transferring.
• Eating and drinking.
• Managing medications.
• Communication.
• Maintaining a safe environment.

The best approach depends on the individual’s needs, preferences, and the resources available. Read more about how our live-in care services could help your loved one live well at home with dementia.

5. How can I communicate effectively with someone who has dementia?

Communication can become challenging as dementia progresses, but there are strategies that can help:

• Speak slowly and clearly: Use simple language and short sentences.
• Maintain eye contact: This helps the person focus and feel connected.
• Use non-verbal cues: Gestures, facial expressions, and touch can reinforce your message.
• Reduce distractions: Minimise background noise and visual clutter.
• Ask one question at a time: Allow time for a response.
• Be patient and understanding: Avoid correcting or arguing.
• Focus on feelings rather than facts: If they are distressed, acknowledge their emotions.

We’ve put together some useful tips on things to avoid saying when speaking to someone living with dementia, please see here.

6. What are some strategies for managing behaviours of concern?

Changes in behaviour are a common part of dementia. Understanding the underlying causes can help in managing them:

• Identify triggers: Try to understand what might be causing the behaviour (e.g. pain, frustration, changes in routine).
• Simplify tasks: Break down activities into smaller, manageable steps.
• Maintain a consistent routine: Predictability can reduce anxiety.
• Provide a safe and comfortable environment: Minimise hazards and ensure their needs are met.
• Redirect attention: If they become agitated, try gently guiding them to a different activity.
• Focus on their abilities: Encourage activities they can still participate in.
• Seek professional guidance: Doctors or other dementia care specialists can offer tailored strategies and support.

7. How can I cope as a caregiver? It’s emotionally and physically demanding.

Caregiving for someone with dementia is incredibly rewarding but also incredibly challenging. It’s essential to prioritise your own well-being:
Seek support: Connect with family, friends, support groups, or online communities. Sharing your experiences can be invaluable.
Educate yourself: The more you understand about dementia, the better equipped you’ll be to provide care and cope with challenges.
Take breaks: Respite care, even for a few hours, can help prevent burnout.
Prioritise self-care: Make time for activities you enjoy, exercise, and healthy eating.
Be kind to yourself: Acknowledge that there will be difficult days, and it’s okay to feel overwhelmed.

8. What resources are available for dementia care?

There are many organisations and resources available to support individuals living with dementia and their caregivers:

• Local Alzheimer’s Society or other dementia support groups: Offer information, support groups, and local resources.
• National dementia helplines such as Dementia UK: Provide information and guidance over the phone.
• Online forums and communities: Connect with other caregivers for support and advice.
• Home care: Offer professional care in the person’s home.
• Respite care services: Offer temporary relief for caregivers.
• Financial assistance programs: Explore options for funding care.

9. When is it time to consider professional care?

Deciding when to consider professional care is a deeply personal and often difficult decision. Factors to consider include:

• The person’s increasing care needs: If their needs become too complex or demanding to manage at home.
• Your own physical and emotional well-being: If caregiving is significantly impacting your health.
• The person’s safety: If staying at home is no longer safe without support.
• The person’s preferences (if they can still express them).

We discuss this more here. This decision often involves open and honest conversations with family members, healthcare professionals, and the person with dementia if possible. Our client services team are happy to talk you through the first stages of considering care, please give us a call on: 03330 605 255

10. What can I do to plan for care in advance?

Planning ahead is crucial to ensure that you and your loved ones are prepared for the potential challenges that come with ageing and dementia.
One of the first steps you should take is to set up a Lasting Power of Attorney (LPA). This is a legal document that allows you to appoint someone to make decisions on your behalf.

Getting a diagnosis is also important if you don’t have one already as this can open doors in terms of support, including eligibility for local authority and NHS Continuing Healthcare funding.

It’s also a good idea to start thinking about living arrangements. You might want to start considering home adaptations such as handrails or walk-in showers as they can allow you or your loved one to remain living at home for longer.

Building a good support network is key because understanding care options and funding can be a lot. If you’re worried about care costs for a loved one, local councils often have groups for carers where you can get advice and talk to others who understand.

Support for dementia care

We hope this FAQ has provided some helpful information and reassurance. Remember that you are not alone in this journey. By seeking knowledge, support, and understanding, you can navigate dementia care with greater confidence and compassion.

This Dementia Action Week, we asked Dr Jane Pritchard, our experienced in-house Admiral Nurse to share her insights on dementia, the importance of early diagnosis, and the support available. Here’s what she had to say:

1. What exactly is an Admiral Nurse, and how does The Good Care Group support individuals with dementia?

As an Admiral Nurse, I’m a specialist dementia care nurse. The Good Care Group provides live-in care, which means a dedicated carer lives in the person’s home. This allows individuals with dementia to remain in their familiar surroundings, close to loved ones and their community.

2. Why is it so important to raise awareness about dementia, especially during Dementia Action Week?

Dementia affects nearly a million people in the UK, and it’s crucial to increase understanding of this condition. Raising awareness helps to reduce stigma, encourage people to seek help, and promotes early diagnosis, which can significantly improve outcomes.

3. Could you explain what dementia is and highlight some of the early warning signs?

Dementia is an umbrella term for a range of conditions that affect the brain, impacting cognitive abilities and decision-making. While the risk increases with age, it’s not a normal part of aging. Early signs can include short-term memory loss (like forgetting appointments), getting lost or disorientated, and difficulty finding the right words or names.

4. What are some common misconceptions about dementia that you’d like to address?

One common myth is that there’s no point in getting a diagnosis because nothing can be done. However, research shows that people want to know, and an early diagnosis allows for better planning, access to support, and even medication for some types of dementia. Another misconception is that dementia is just “senility” – this is not true, dementia is a medical condition, not an inevitable part of aging.

5. What are the benefits of receiving a timely dementia diagnosis?

A diagnosis empowers individuals to make choices about their future, access vital support services for themselves and their families, and potentially benefit from available medications and opportunities to participate in research. People with a diagnosis also tend to have shorter hospital stays and may be entitled to benefits and carer support.

6. What should someone do if they are worried about their memory or noticing dementia-like symptoms?

The first step is to talk to your GP. It can be helpful to bring someone with you who may have noticed things you haven’t. Don’t hesitate to ask for a longer appointment and consider writing down your concerns beforehand.

7. What does the diagnostic process typically involve after speaking with a GP?

The GP will take a history and may conduct some initial memory tests and a physical examination, including blood tests to rule out other causes. If further investigation is needed, they will refer you to a local memory assessment service or dementia team for a more detailed assessment, which might include brain scans.

8. What kind of support is available after receiving a dementia diagnosis?

Support is available through the local authority, which can conduct financial and needs assessments and help with appointing care agencies if needed. Charities like the Alzheimer’s Society and Dementia UK offer invaluable information, advice, and helplines. Dementia UK’s helpline even has Admiral Nurses available for specialist advice and emotional support.

9. How can people continue to live well with dementia?

It’s crucial to remember that a good quality of life is still possible with dementia. Early diagnosis makes it easier to achieve this by enabling access to the right support and strategies.

10. What is the key message you want to share during Dementia Action Week?

During Dementia Action Week, we urge people to learn more about dementia, understand how to get help, and know how to support those affected. Please visit the Alzheimer’s Society and Dementia UK websites for further information.